General resource pages -- a good place to start
Pages with lots of preemie-related links
How does having a preemie affect a family? What can I do to help?
Medical issues relating to prematurity
Preemie baby pages
Parents of Preemies: Answers to commonly-asked questions -- from the
University of Wisconsin and The Center For Perinatal Care at Meriter Hospital,
Madison, Wisconsin. Many of the following pages are at this site.
to look for in a NICU (Neonatal Intensive Care Unit)
and jaundice -- Neil was under phototherapy lights for the first few
weeks, dealing with persistently high bilirubin. He was on actigall for
the first month after coming home, to help his body process the last
remnants of the bilirubin, but it's finally not an issue any longer.
of prematurity -- This was a big problem for Neil; somehow his body just
didn't quite remember to breathe. He'd pretty much stopped being apnic by the
time he came home, though he was still having the occasional bradycardia.
some more information about apnea; Neil does still have the occasional apnea
associated with reflux.
Ductus Arteriosus -- Neil's was surgically ligated after indomethacin
didn't close the PDA entirely. After the ligation, he had pneumothorax
-- excess air in the chest cavity.
Prematurity -- Preemies' eyes are checked weekly once they're 6 weeks
old until their eyes are mature. At their worst, Neil's eyes were
stage 1-2. They matured, though, and we only had to visit his
opthamologist twice after coming home from the hospital. Preemies
are at risk for other vision problems as well; Neil has a lazy eye, which
we're trying to correct.
Entercolitis -- This can be really serious, and scares preemie parents
for quite some time. We saw one baby die from complications related
to NEC; it's an evil evil thing.
(sepsis) -- Infections seem to strike without warning; they can cause
a massive setback in your preemie's progress, and can even result in death.
101 -- Cerebral Palsy is often an issue for babies with
intraventicular hemmorhages, but babies without
can get it too.
for Newborn ICU Design -- the environment in which preemies spend the
first part of their lives is very important; here's some suggested standards
for NICU design.
Know other preemie-related sites we might want to include?
Let us know!
Back to Neil's page.